Who I Am: Melissa

Seriously I agree with everything you have said. It is truly frustrating going through this condition with no exact answers ever.

Mon, 20 May 2013 00:26:51 -0400

Yeah it sucks :/

Who I Am: Melissa: Arthrogryposis

musicislove — Sun, 19 May 2013 22:31:02 -0400

katinar:

whoiammelissa:

Whoever said this condition is non-progressive clearly has not been on Tumblr and have read through all of the AMC related post! Seems like most of my fellow AMC tumblr friends seem to be in as much pain as I am. The pain only seems to get worse as I get older. And the worst part is majority of…

Ugh, this is exactly why I still doubt it when doctors say its non-progressive. Clearly it has to be, because I’m worse now than I was a few years ago, and I’ve heard from people twice my age saying they’ve gotten worse as well..

I can really relate to this. At 21 now I take heavy medication and muscle relaxers daily just to be able to get through my day. Whoever said its non progress clearly is wrong. Over the years for me had been noting but constant pain and new diagnosis for me. Things that I have never thought if have to go through, I do. There needs to be more research and studies on this conduction before anyone states anything about it. If anything ask the people who truly experience it EVERY SINGLE DAY.

Exactly! There has to be some sort of progression. And how can they know for sure it’s non progressive when there’s like only one expert doctor on it supposedly?! It sucks that we don’t know what to expect and we can’t ask doctors because they don’t know either :/

Arthrogryposis

musicislove — Sun, 19 May 2013 04:58:33 -0400

Whoever said this condition is non-progressive clearly has not been on Tumblr and have read through all of the AMC related post! Seems like most of my fellow AMC tumblr friends seem to be in as much pain as I am. The pain only seems to get worse as I get older. And the worst part is majority of the doctors don’t know what to do with us!

I’m writing this because I had some severe muscle spasms and back pain tonight. Seems like I can’t do something as simple as putting away my clothes or making my bed without ending up in pain afterwards. Since when did day to day activities get so hard?! Why do my muscles hate me so much from just walking from my room to the kitchen?!

Gah.

Today I cleaned my room. Took me all day and I’m still not done. I’m soooo sore from this. It sucks that I get extremely tired after 5 minutes and need to sit down and take a break. It sucks even more when I can’t tell my family I’m in pain because they think the solution is to move around more. Did you not understand that I was active for a few minutes and I’m in this much pain?! And you want me to move around more?!

Also sucks when pain medication does nothing for you anymore.

Now I get to lay here again not being able to sleep because my body is deciding it wants to throb and burst with pain.

Lucky me.

valbakuh: This is my best friend @sgoldman17 everyone. My...

musicislove — Sun, 19 May 2013 01:02:21 -0400

valbakuh:

This is my best friend @sgoldman17 everyone.

My friend and I were actually talking yesterday about how there’s no Disney commercials with people with disabilities!

devotee: Izabela Sopalska

musicislove — Sun, 19 May 2013 00:46:16 -0400

devotee:

Izabela Sopalska

Scrolling through the Arthrogryposis Tag

musicislove — Mon, 13 May 2013 22:15:04 -0400

valbakuh:

and EVERYONE seems to be in a lot of pain. I am too….What the hell is going on. Whoever is sending the pain vibes to all the AMC’ers needs to calm down!

Seriously right?!

My thighs and hips hurt soooo much tonight :( I need a personal masseust. #inpaineveryday

musicislove — Mon, 13 May 2013 02:04:56 -0400

My thighs and hips hurt soooo much tonight :( I need a personal masseust. #inpaineveryday

Just had my sister rub tiger balm all over my lower back. It’s killing me tonight :( the left...

musicislove — Tue, 07 May 2013 23:47:56 -0400

Just had my sister rub tiger balm all over my lower back. It’s killing me tonight :( the left side has been hurting for days and I’m kind of used to it by now. Then it acted up again really bad two days ago. I think it’s because I pulled a muscle when I was hanging my clothes in my closet. I figured since my doctor said the pain is most likely coming from my weak joints, that reaching up to hang bothered it. Then today as I was walking I started to get really bad pain in the same area but on the ride side of my back. I’ve never had pain there before. I think this one might be due to me trying to reach to turn my fan off. Whatever it is it sucks. I’ve literally had to crawl in bed and put a pillow under my back and not move. It even bothers me to stand straight up. I feel like I’m walking around hunch backed :( I just wish my stupid insurance would hurry up and approve the procedure my doctor wants to do to see if it helps any. Pain sucks.

@DGirlProblems: When moms with kids cut you off to get the handicapped stall :/ #DGirlProblems ...

musicislove — Sat, 04 May 2013 04:00:37 -0400

@DGirlProblems: When moms with kids cut you off to get the handicapped stall :/ #DGirlProblems #DisabledGirlProblems

Just Around Half Past 12: I can’t believe I cried in front of people. In school. IN FRONT OF...

musicislove — Fri, 03 May 2013 18:04:34 -0400

Just Around Half Past 12: I can’t believe I cried in front of people. In school. IN FRONT OF...:

lillamolnet:

I can’t believe I cried in front of people. In school. IN FRONT OF PEOPLE. And it wasnt even quiet years running it was actual sobbing. Man I hate crying in front of people in general, when it’s my classmates just no.
I am not comfortable crying in front of people, especially not people that are…

Always here if you wanna talk ;)

betype: Calligraphy on girls by nfgraphics.com - (NSFW) Get...

musicislove — Fri, 03 May 2013 17:57:14 -0400

betype:

Calligraphy on girls by nfgraphics.com - (NSFW)

Get inspired on Betype.co

Crazy awesome

Rated R

musicislove — Thu, 02 May 2013 00:58:16 -0400

So the following post is recommended for those 18 and over seeing as it deals with a mature subject matter. Just a warning, but if you’re younger and sexually active then I hope it helps too.

I got asked today by someone else with a disability if I’ve ever had sex? And if I have, how far have I gone? Now because I know this person I answered their question, but since this is Tumblr I am not going to say “how far I’ve gone” because well that’s my personal business.

However I will write about generally what I told that person because I feel it can help others with disabilities who want a sexual life.

Sex can be tricky when you have a disability, especially a physical one that limits you. But just because you may not be able to have “normal sex” (which btw does that still even exist?!) doesn’t mean you can’t have sex or be a sexual person. There are tons of different positions you can try and other acts that don’t involve standard missionary that you and your partner can try. You shouldn’t feel bad because you may not be able to do a lot of standard sexual things. Do what works for you. The most important thing is communication. Communicate with your partner about what makes you most comfortable physically and adapt. Not only will this put less of a stress on your body from the disability, but I’m sure it will make yours and your partners sex life that much better because you will both have a good understanding of what each other likes.

So there. That’s my one (and probably only) public sex post.

Hope this helps someone?

Just tried watching the first 5 minutes of a Push Girls episode, and yeah, still hate it.

musicislove — Mon, 29 Apr 2013 00:58:12 -0400

Just tried watching the first 5 minutes of a Push Girls episode, and yeah, still hate it.

Yup.

musicislove — Tue, 23 Apr 2013 03:56:23 -0400

Yup.

whitney-diane: My little solider Dude! Why can’t by...

musicislove — Tue, 23 Apr 2013 03:04:30 -0400

whitney-diane:

My little solider

Dude! Why can’t by braces have colored straps?! I would totally rock them to match my hair each time I dyed it!!!

dbclark981: This looks like fun! I would totes do this!!!!

musicislove — Tue, 23 Apr 2013 02:55:08 -0400

dbclark981:

This looks like fun!

I would totes do this!!!!

disabilityculturalcenter: One of the cutest and littlest...

musicislove — Tue, 23 Apr 2013 02:48:16 -0400

disabilityculturalcenter:

One of the cutest and littlest Whovians

Omg I have a feeling this is going to be my costume for comic con!!!!

Sometimes I Google stalk myself….

musicislove — Sat, 20 Apr 2013 04:40:02 -0400

Sometimes I Google stalk myself….

Hi there

musicislove — Sat, 20 Apr 2013 01:55:47 -0400

So I know it’s been a while since I’ve blogged and I apologize. A lot has been going on. But have no fear, I’m here to let the 5 people that actually read this blog (who are all awesome btw!) what’s going on in my life.

- I left my job. It was beginning to be too much for me and with my health kind of being up and down I decided it was for the best to resign. Sucks not getting a monthly paycheck but work was becoming exhausting mentally and physically. I’m still doing freelance though, so if you know anyone looking for an illustrator or graphic designer send them my way pretty please!

- As I mentioned above, my health has kind of been like a roller coaster as of late :( I’m in a lot more pain than usual and most days nothing seems to help. The two biggest problems have been my back and leg. My spine doctor told me my joints are deteriorating which is why I’m so uncomfortable most of the time :( He was going to do a procedure but things got postponed so now I’m just waiting. And as for my leg, well it’s just been all out of whack since I fractured it last summer. I can’t bare weight on it for a long period and I think I stepped on it wrong when I was walking earlier and bam! Instant pain :( Now I’m lying here with my leg elevated, rubbing tiger balm and taking a pain killer.

- Dating. Yeah, it’s confusing. It sucks and it’s fun and exciting, but mostly it’s just confusing. Since my break up I’ve been talking to dudes and everything’s good usually up until the part where I tell them I’m in a wheelchair. Then they fall on the face of the earth. For the few guys that make it past that round, the awkwardness grows on the first date then I usually don’t here from them anymore either. Though most of my luck has been shitty, things started looking up when I met someone I started to really like. We went on a few (I guess they were dates, I looked at them as hanging out) dates and things were really great. I was happy, even if it didn’t last very long. And I was sort of excited and proud that I was able to snag an able bodied guy (not that it really matters, I just don’t like people who think handicapped people should only date other handicapped people). But without going into specifics we didn’t end up working and that sorta bummed me out but hey, it was fun while it lasted! Yeah though, being disabled and dating just confuses me. People are so strange in what they want as an ideal partner and aren’t willing to be open minded. It’s weird.

- I got a new toaster oven! Lol I know it’s lame but I’m actually really excited about this. I’m not able to reach the over in my kitchen and my hands aren’t the sturdiest and it sucks because I love to cook, especially bake. A friend has been telling me for months that I should get one and it will make my life so much easier so I finally caved. I tried it for the first time tonight and it wasn’t too difficult for me, so I’m excited to bake all sorts of things!!!

So yeah, that’s what’s been going on. I’ll probably be drawing a lot more now that I have the time. I know it’s not directly related to disability but if you guys wanna check out my website: www.melissasanchezart.com (which I’m actually updating atm so maybe give me a day lol) or follow my art related blog: www.musicislove.tumblr.com I’d really appreciate it! And ya know if you like anything you see I have a link to my web store! I have super cheap prints for sale!! Plus I take commissions so if you like want a cat driving a car or Dr. Who time traveling to King’s Landing shoot me an email.

Well that’s it for now. Hope everyone has a good weekend :)

And just like that it all falls apart….. Rejection sucks.

musicislove — Wed, 17 Apr 2013 23:02:47 -0400

And just like that it all falls apart…..

Rejection sucks.