molliemonsterrr23 asked: Seriously I agree with everything you have said. It is truly frustrating going through this condition with no exact answers ever.
Yeah it sucks :/
Who I Am: Melissa: Arthrogryposis -
Whoever said this condition is non-progressive clearly has not been on Tumblr and have read through all of the AMC related post! Seems like most of my fellow AMC tumblr friends seem to be in as much pain as I am. The pain only seems to get worse as I get older. And the worst part is majority of…
Ugh, this is exactly why I still doubt it when doctors say its non-progressive. Clearly it has to be, because I’m worse now than I was a few years ago, and I’ve heard from people twice my age saying they’ve gotten worse as well..
I can really relate to this. At 21 now I take heavy medication and muscle relaxers daily just to be able to get through my day. Whoever said its non progress clearly is wrong. Over the years for me had been noting but constant pain and new diagnosis for me. Things that I have never thought if have to go through, I do. There needs to be more research and studies on this conduction before anyone states anything about it. If anything ask the people who truly experience it EVERY SINGLE DAY.
Exactly! There has to be some sort of progression. And how can they know for sure it’s non progressive when there’s like only one expert doctor on it supposedly?! It sucks that we don’t know what to expect and we can’t ask doctors because they don’t know either :/
Whoever said this condition is non-progressive clearly has not been on Tumblr and have read through all of the AMC related post! Seems like most of my fellow AMC tumblr friends seem to be in as much pain as I am. The pain only seems to get worse as I get older. And the worst part is majority of the doctors don’t know what to do with us!
I’m writing this because I had some severe muscle spasms and back pain tonight. Seems like I can’t do something as simple as putting away my clothes or making my bed without ending up in pain afterwards. Since when did day to day activities get so hard?! Why do my muscles hate me so much from just walking from my room to the kitchen?!
Today I cleaned my room. Took me all day and I’m still not done. I’m soooo sore from this. It sucks that I get extremely tired after 5 minutes and need to sit down and take a break. It sucks even more when I can’t tell my family I’m in pain because they think the solution is to move around more. Did you not understand that I was active for a few minutes and I’m in this much pain?! And you want me to move around more?!
Also sucks when pain medication does nothing for you anymore.
Now I get to lay here again not being able to sleep because my body is deciding it wants to throb and burst with pain.
This is my best friend @sgoldman17 everyone.
My friend and I were actually talking yesterday about how there’s no Disney commercials with people with disabilities!
and EVERYONE seems to be in a lot of pain. I am too….What the hell is going on. Whoever is sending the pain vibes to all the AMC’ers needs to calm down!
My thighs and hips hurt soooo much tonight :( I need a personal masseust. #inpaineveryday
Just had my sister rub tiger balm all over my lower back. It’s killing me tonight :( the left side has been hurting for days and I’m kind of used to it by now. Then it acted up again really bad two days ago. I think it’s because I pulled a muscle when I was hanging my clothes in my closet. I figured since my doctor said the pain is most likely coming from my weak joints, that reaching up to hang bothered it. Then today as I was walking I started to get really bad pain in the same area but on the ride side of my back. I’ve never had pain there before. I think this one might be due to me trying to reach to turn my fan off. Whatever it is it sucks. I’ve literally had to crawl in bed and put a pillow under my back and not move. It even bothers me to stand straight up. I feel like I’m walking around hunch backed :( I just wish my stupid insurance would hurry up and approve the procedure my doctor wants to do to see if it helps any. Pain sucks.
@DGirlProblems: When moms with kids cut you off to get the handicapped stall :/ #DGirlProblems #DisabledGirlProblems
Just Around Half Past 12: I can’t believe I cried in front of people. In school. IN FRONT OF... -
I can’t believe I cried in front of people. In school. IN FRONT OF PEOPLE. And it wasnt even quiet years running it was actual sobbing. Man I hate crying in front of people in general, when it’s my classmates just no.I am not comfortable crying in front of people, especially not people that are…
Always here if you wanna talk ;)