The hardest period in life is one’s twenties. It’s a shame because you’re your most gorgeous and you’re physically in peak condition. But it’s actually when you’re most insecure and full of self-doubt. When you don’t know what’s going to happen, it’s frightening. — Helen Mirren, Esquire interview (via earthlightened)
(Source: sarahjoyetotheworld, via peggysueaside)
Online Songs by blink-182 on Spotify -
Pretty much sums up tonight :/
Sometimes I wonder why I even try?
A few days ago in a parking lot in Lisbon wheelchair users and volunteers occupied all the available Non-Handicap spaces to make a point to able-bodied motorists what it is like to have “their” parking places unavailable to them.
On every wheelchair various notes were left like: "be right back", "it only takes a moment", "I’m get something here", etc.
Via Mobility Van Videos by EJ Dulina
Reblogged this yesterday from a different source, but I think this photograph is more powerful.
I love this so much I’ll reblog it a million times!
Didn’t really need the wheelchair if they decided to leave it, did they?
maybe they were chairs loaned by volunteers.
maybe they were provided by wheelchair users with more than one chair.
maybe they were provided by people who can walk short distances, but need a chair for long distances.
maybe they were provided by wheelchair user who felt the issue was so prevalent they actually sacrificed the ability to get around for the time they were placed there.
those are just a few possibilities. but, gee, how dare those fakers not be grateful enough for the few crumbs - passed as accessibility - thrown at their feet, that they have to swallow with a fucking smile on their face every day, so some asshole won’t attack their speaking up about their experiences as a disabled person.
(Source: thalensis, via katinar)
In spirit of the photo set of wheel chairs in parking slots in protest of people who don’t need to park at a handicap parking space, I’d just like to rant about another thing that really pisses me off; people who don’t need to use handicap toilets and still do
Because seriously, if you don’t…
Seriously! And it pisses me off even more when they cut you off to get to the stall first!
New articles on Arthrogryposis -
If you haven’t seen or read already, there are new articles on Arthrogryposis by Dr. Judith Hall that have just been published. If you don’t wanna read through all of them here are some of the things I gathered that specifically pertain to my case:
- Small dimples over affected joints. Makes sense. The area where I have a lot of my back/hip pain has a huge crease or I guess you could say dimple over it.
- Arthritis developing in mid 20’s. Thank you! While they state there are no major problems occurring for those with AMC later in life they do mention that one of the few things that can occur is Arthritis. Um I know a lot of my Tumblr AMC friends and myself included would say this isn’t a tiny problem for us! While I can see how a doctor/professional can see how Arthritis is not major - us, the ones who have to live with it, well it kind of is a big deal! It’s a pain in the ass always hurting. I’d say that’s kind of a big uncomfortable problem.
- Left side and lower limbs are at greater risk of being affected. While all four of my limbs are affected, my weaker side does happen to be my life side.
- Mobius syndrome/decreased facial movement. In my case partial facial paralysis on the left side.
Of course the article mentions the typical club feet, dislocated hips, scoliosis, etc. etc. I have to say even though it took years I’m glad there is new info on this - though I do think it does tend to focus on children and newborns and the development or Athrogryposis. I wish there was a study and more information for adults living with AMC. Of course even if that does happen in the future it’ll probably be a long time coming since these articles took over 35 + years of collecting data :/
If pain must come, may it come quickly. I have a life to live, and I need to live it in the best possible. If he has to make a choice, may he make it now. Then I will either wait for him or forget him. Waiting is painful. Forgetting is painful. But not knowing which to do is the worst kind of suffering. — Paulo Coelho (via psych-facts)
Currently laying in bed listening to the rain. It sounds nice. We don’t get much rain here in California. Though the cold is making my leg hurt I’ve got a patch on it and took a painkiller so it’s all good.
Got a lot of work done today. Spent the night painting and listening to the Frozen soundtrack.
I went to Disneyland yesterday and only lasted a few hours :/ I was exhausted.